Charleys arthritis journey

A routine morning for our JIA daughter

Today Charley had her blood taken at the hospital, just to check her body is coping with the medication to control her arthritis.

A routine morning for our JIA daughter

We have this done every 2 months, unless the results show a bit of a blip and she has to go back earlier than this, so she is quite used to it.

At breakfast today Charley asked as usual what we were doing so I said we were going to hospital to get her bloods taken. This prompted Charley to start drinking her water, saying she didn’t want blood taken from both hands (as she’d had this done last time). If her blood isn’t flowing very well the nurses always say to drink plenty of water next time as this helps.

This made me a tad emotional though as a 3 1/2 year shouldn’t be thinking like this, but it is part of Charleys life at the moment, and I doubt she can remember a time when she hasn’t had to have jabs and medicine as part of her daily/weekly/monthly routine!

When we get in the car, I put the ‘magic cream’ and plaster on to numb her hands so she won’t feel the needle. There is a small protest at this at it signals what is to come at the hospital.

She gets over this pretty quickly and we start our journey.

Charley has a tantrum in the car. I can’t remember why it started but I turn up the radio and try to get Charley to sing along but she just screams to turn it down. There was no real reason for the outburst so I wonder if this is due to her being slightly anxious as to what is coming? Its hard to know. It might just be that she is 3 1/2. Anyway, this is definitely a day for keeping the mood light so I ignore the outburst and she finally calms down.

We bundle out of the car and head to children’s outpatients, where we go straight in to get Charleys blood taken. (Bodhi is in the pushchair in the doorway so he can still see us.) Charley sits on my lap whilst the phlebotomist puts the tourniquet on and another nurse distracts her. As the needle goes in she starts to cry and protests for a little bit whilst I cuddle her, trying to keep her occupied with a Peppa Pig book. Fortunately they get enough blood from just the one hand this time. She declines a plaster but has a sticker, all happy now its done. Me too, I almost feel my body relax.

Then we have to get her chart updated and signed by a doctor, due to her having her medication reduced. This means we have to go to the children’s ward.

Fortunately we are allowed to wait in the playroom which has an amazing array of children’s toys and craft material.

Its a strange feeling though being in the children’s ward.

Charley had to use the toilet whilst we were there and the room we were shown to had a bath in it and children’s bath toys. I had to explain to Charley why the bath was there and why there were toys in it.

It’s hard to imagine what some parents have to go through with their children, we’re pretty lucky really with the odd visit every now and again. Its so sad and hard to imagine that some children spend a large part of their life in hospital.

Once the doctor had updated the chart I was ready to get back to the car, but the children were having a lot of fun and didn’t want to leave, especially Bodhi who was having a ride in a Little Tykes car. Eventually I had to pick Bodhi up and carry him out, the promise of some food soon calmed him though.

Tomorrow Charley will have her last 10mg injection before the dose lowers next week. Fingers crossed her body will cope with this lower dose and the arthritis will stay away.




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2 thoughts on “A routine morning for our JIA daughter”

  1. Quite a sad little read. Won’t it be brilliant if Charley can stop having these injections and blood tests but at least her medicine has been reduced so that’s a good thing.


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